It’s called a meningioma. It’s not strictly a tumor but it’s close enough that the doctors count it in the tumor category. And it’s in my brain.
MY!!!
BRAIN!!!!
WHAT THE EVERLASTING FUCK???!!!!
I’m back and forth between so depressed I can barely move and so anxious I can’t sit still. And the whole time I’m on the verge of tears.
I found out Thursday. Meningioma aren’t big growers. They get in there and just kinda hang out. A lot of women have them and they are no big deal. You don’t even know it’s there because it causes no problems so unless you need a brain MRI for something else it will go undetected for the rest of your life.
But not mine.
Mine has grown .2 cm in the last 6 months. And apparently that’s a lot. But beyond that it is pressing on the pons. I have limited understanding here, but it appears to be on the brainstem…maybe it is the brain stem…I’m uneducated in this area, but I’m working on it. What I do know is that the pons is in one way or another responsible for SO much. Most every symptom I have can be explained away by what this fricking little meningioma is doing. Dizziness? Yep. Forgetfulness? Sure. High blood pressure? Throw it on the pile. And on and on and on.
And now we come to the part that I’m SOOOO bad about. Patience. Have to wait for an appointment locally. I’m getting another opinion at Mayo, so wait for an appointment there. Wait for repeat testing locally AND at Mayo. Although I have to say that all these hospitals that talk about how long stuff takes??? It doesn’t take that long at Mayo. They are quite good at getting patients through the bullshit.
But I digress.
Options that I’m aware of:
- Wait and see…we just did that (although not for that reason) and it got bigger and more intrusive.
- Radiation
- Surgery
Now the one good thing is that meningioma are rarely cancer although the potential exists. Radiation and surgery could work easily but they could also fuck up my bipolar something stellar….or make it better I guess. Or kill me I suppose. Which scares me…which is weird since I’m often at least passively suicidal.
Y’all I’m a mess. This entry is a mess. I need to vent. I need to SCREAM!!!! I need to sob hysterically.
I need answers.
Pray for fast appointments for me!!!
Peace and Love
Ugh, what a sucky way to end 2021 and start 2022. I’m really sorry. It does sound scary that your meningioma is pressing on the pons. I really hope you’ll get an appt at Mayo soon. Why the local appt too? I mean, Mayo are probably fare more knowledgeable than your local hospital. Anyway, I’ll pray for you.
LikeLiked by 1 person
Thank you. I probably won’t go to any local appointments. My plans change by the minute! 👍
LikeLiked by 1 person
My son at 7 years old was found to have a slow growing tumor that is benign but due to the area it has been tried to be removed three times. He is now 19. I don’t have personal experience of what your going through but adjacent experience having to make tough decisions for him. If you need someone to talk to about it away from here feel welcome to email me at iammyownisland@gmail.com I can give you insight into what I’ve learned from medical trail and error. I will keep you in my prayers. ❤
LikeLiked by 1 person
Thank you so much! I may take you up on that.
LikeLike
I’m sorry to hear about this. I’ve never heard of it, I had to look it up. I hope you find the right care, whether it means surgery or something else. Good luck.
LikeLiked by 1 person
Thank you so much. I had never heard of it either.
LikeLike
So sorry you are going through this. The uncertainty and waiting are a hell of their own without a tumor. Sending prayers your way💜
LikeLiked by 1 person
Thanks. I appreciate it. I’m not known for my patience 😁🤷♀️
LikeLike
So sorry to hear your news. I also have a frontal meningioma which is at the front of the brain and in the brain sac. It was diagnosed in 2004/2005 timeframe. I have just had a MRI done (summer 2021) with no significant change in size. Hoping for you that what you found in January is benign and not a source of other problems.
LikeLiked by 1 person
I ended up having Gamma Knife surgery. It is benign but if it continues growing at the current rate it would blind me. The Gamma Knife radiation is supposed to stop it from growing. Fingers crossed!
LikeLike