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I would have hoped that by the time I reached part 4 of this series I would be proclaiming victory.
Not so much
What I am proclaiming is that I am still waiting. My request for a hearing was accepted by SSA last August. Nine long months ago. I called my lawyer this morning to pound my ineffectual little fists and cry “Are we there yet?”.
And of course, we’re not. In fact it may yet be several months (several months????) before we hear anything. Apparently at this point in the process the SSA is gathering my medical records (again) and putting them in order and labeling them as exhibits for my hearing. And THEN we get to look at it, add what we need to, and then go to the hearing.
I asked Karen this morning if she has heard from the SSA and she hadn’t. So that’s fantastic. They’re already missing a critical leg to this pathetic little table. I see pdoc next week and will check with her also.
The money is crucial. But it’s not my only issue. I would like to come into the light and shed my penname. I would like to be known by my real name. I would like to post my picture.
But the lawyer’s told me straight off that I shouldn’t discuss my situation online. Hence the fake name and email under the same fake name. I guess if I’m well enough to blog, then I’m not sick enough for disability, no matter what my doctors say.
But, once this mess is over, I will be writing congressmen, state reps, presidents/candidates. Reform is needed. If I weren’t living with someone who’s willing to support me, I don’t know what I would do. I don’t know how some people do it. I really really don’t.
But, for now? We wait.
morgueticiaatoms said:
It’s good advice, not discussing things on line under your real name. Social Security uses social media like a mad hatter these days. Post one picture to Facebook of yourself at the beach smiling? Fraud charges. (I wish I were joking, this actually happened to someone.)
I’ve never really used my legal name for my writing so pen names on line just feel like my norm. I know it wouldn’t take much skill or motivation for someone to track me by IP address or whatever, but I’m not gonna make it too easy for them by using a real name 😉
That being said…last review they wanted from me, I actually submitted some of my blog writing (minus metadata and such). This is my truth. It attests to my ever changing stability in a way I could never do verbally and coherently.
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Leslie said:
I’ve been copying my blog posts to a word file so that I have them for the hearing…assuming I ever get that far. It’s my journal. It’s all in here.
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smirkpretty said:
I’m so sorry you have to fight this fight. What a bureaucratic nightmare. You are stronger than any of them realize, though… probably more than you even knew you could be.
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Leslie said:
Thank you! And thank you for commenting
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Sandy Sue said:
Ugh. I remember how horrible the process was. I think I must have had a Rock-star lawyer to only have to apply twice. Sending all my best juju.
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Leslie said:
Thanks Sandy. This is actually still technically my first application. I applied, I appealed and now I’m having a hearing. Or maybe that really is three. Eh, I can’t wait till it’s resolved! Thanks for the juju!
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